Kniha Ultra-Violet Debbie Frisk

Ultra-Violet

One Girl's Prader-Willi Story

Jazyk: Angličtina
Vazba: Brožovaná
Vydavatel: RTC Publishing
Dostupnost: Skladem u dodavatele
Odesíláme za 9-15 dnů
307
Estimated to occur once in every 15,000 births, Prader-Willi Syndrome is a rare genetic disorder tha...

Informace o knize

Jazyk
Angličtina
Vazba
Kniha - Brožovaná
Vydáno
2014
Stránek
82
EAN
9781939418708
ISBN
1939418704
Enbook ID
12513406
Vydavatel
Hmotnost
145
Rozměry
170 x 244 x 4

Kompletní popis

Estimated to occur once in every 15,000 births, Prader-Willi Syndrome is a rare genetic disorder that includes features of cognitive disabilities, problem behaviors, and, most pervasively, chronic hunger that leads to dangerous overeating and its life-threatening consequences. Ultra-Violet: One Girl's Prader-Willi Story draws on dozens of intensive interviews to offer insight into the world of a young girl with Prader-Willi Syndrome. For Violet, Prader-Willi Syndrome impacts everything from family and social relationships to education to her own self-image. But with the persistence of her parents and the help of experts, she will eventually discover not just how to live with Prader-Willi Syndrome-but how to live as Violet.

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